Wednesday, December 29, 2010
Dr. Grant, the neurosurgeon called me before Christmas with the news that not only did the mri show that Shelby's shunt is in proper working order, but that her brain is growing! We knew this from the 18-month head measurements at the pediatrician, but I still harbored a small fear leftover from the radiologist's report that maybe her head was swollen or under pressure. Thankfully that is not the case.
Shelby had bloodwork to check her Keppra (seizure medication) levels and an EEG on December 23rd. We went to see Dr. Poplawski yesterday to get the results. Shelby's EEG showed abnormal epileptiform discharges in two different parts of her brain. This is not surprising since Shelby's brain is not typical, but it basically means that she is very prone to seizures (which we knew). Even though we have only noticed seizures a few times, and not at all since October, the doctor thinks it would be detrimental to take her off the Keppra. This is fine with Trip and me, because Shelby doesn't seem to have any side effects on this medicine. If she starts to have more frequent seizure episodes, then we may increase her dosage.
Dr. P was very impressed with Shelby's development over the past 6 months--especially with how much her cortical visual impairment has improved. We're done with doctor appointments for awhile....yippee! (As you can see below, Shelby is in complete agreement with this sentiment).
Monday, December 27, 2010
Is there any other way to eat hot chicken noodle soup than by the light of your new headlamp?
Exploring her new drum from Papa and BeBe.
Monday, December 13, 2010
Sunday, December 12, 2010
We woke up this morning to a couple inches of slushy snow on the ground. Henry got to walk around in it for the first time. Isn't he cute?
Saturday, December 11, 2010
We went to her 18 month well check-up with the pediatrician on Wednesday afternoon. I think Shelby remembered her doctor experience from the MRI the day before because she cried any time Dr. Love came near her. Anyway, though Shelby has gained weight and is almost to 20 pounds, she is still in the 2nd weight percentile. The good news is that Shelby's head is starting to grow a little bit. Maybe one day, it will be on the charts! It is a good thing she has big hair....
Dr. Love already had the radiologist's report on the MRI. According to the report, one of Shelby's ventricles appeared swollen when compared to the scans from last June. This could indicate that her shunt is slowly malfunctioning. Dr. Love assured us that this was not an emergency situation, and that the radiologist may have even misread it--especially because it is nearly impossible to get the same cross sections on each scan. Since I knew it would be a few days before we would hear anything from Dr. Grant, I called Shelby's neurologist on the way home. He pulled up both of Shelby's brain scans on the computer and compared them. He did not see any significant difference. Now we are just praying and waiting for that same reassurance from Dr. Grant. I don't think he would want to do a shunt revision unless Shelby were actually showing outward signs of a malfunction, which she thankfully isn't. But it is frightening to think of her brain (which has already been through so much) under any kind of pressure.
We've got an EEG and appointment with the neurologist coming up after Christmas and will keep everyone posted on the results.....
Tuesday, December 7, 2010
I actually think this photo is pretty hilarious. It was the best of several attempts. Harding was being impish and uncooperative. Shelbs was simply not having it. I finally had the brilliant idea of bribing Harding with chocolate. That worked instantly. But at that same point Shelby was done (and so were the rest of us). So we had Harding take a picture with just Burney and it turned out completely adorable.
Chocolate is a huge motivator for Harding--he comes by it honestly. I plan to use this to my advantage again in the near future. If only it worked with his little sister...
Shelby is difficult to photograph to say the least. She does not sit still or smile for the camera. We had a snow day yesterday, and I decided to order our Christmas photocards while the kids were napping. As I sifted through all our picture files, I was once again reminded of how impossible it is to capture Shelby and Harding smiling (or even looking at the camera) at the same time. Don't think I am striving for perfection, I just want to get a decent, card-worthy shot of the four of us.
(Picture taken of Shelby Frances last October. Doesn't she look mischevious? This is actually a pretty accurate representation of her personality...the little stinker!)
Sunday, December 5, 2010
Last Saturday, we stopped in the middle of bamboo floor installation chaos and went to a puppet show of Aesop's fables. Harding loved it! Here he is with Momo and Bop.
Birthday dinner at Papas and Beer. Here he is wearing the birthday sombrero that was plopped on his head when all the wait staff sang to him. You can tell how unsure he was about that situation.
Here is Spiderman with his train cake: