Neurologist appt. and EEG

We went to see Shelby's neurologist on December 14th and he scheduled a routine EEG for last Thursday. Dr. Poplawski's nurse called us this afternoon with the results. The EEG showed intermittent slowing of Shelby's brain waves in the area of her shunt. This is different from the epilipti-form discharges that he noticed in the EEG she had back in August. Dr. Poplawski thinks this means Shelby is having subclinical seizures and is putting her back on Keppra (not real sure why we stopped in the first place).  After we get her dose up and she is on the medication for a month or so, we will do another EEG. As usual, we're not really sure what all this means, but we're thinking that the fact that these seizures are localized in the area of the shunt makes them not as bad as others. We go to the ophthalmologist on Wednesday, then I think we'll be finished with doctor appointments till next year!

The "Blizzard" of '09

We're snowed in here....it started yesterday morning and kept coming all day. We lost electricity, but are lucky to have wonderful next-door neighbors with a wood stove in their basement who put us up for the night. I think we got about 15 inches--the most that Trip and I have seen since we moved to Asheville and certainly the most snow that Harding has ever seen. It has been really fun to play outside in it with the kids and all of our neighbors. We built a huge snowman. Trip and I just watched people out walking pose for pictures with him. Harding said that he wanted it to come to life. Our power is back on now, the kids finally fell asleep, the house is slowly warming up and I'm about to start baking banana bread. Life is good.

Ouch!

I finally got a good picture of Shelby's brand new chompers and can personally attest to the fact that she has been putting them to good use!

And to Aunt Chris (who shamelessly spoils my children): Thanks for the festive pajamas!!

Sibling Play

I have been looking forward to the time when Shelby and Harding would really start interacting with each other. Lately, I am seeing glimpses of this interaction and it is exciting! Yesterday, Shelby was having some tummy time with one of her favorite toys. This is one of the only positions we can put her in with the dreaded hip brace and luckily she will tolerate it for small periods of time if she has an interesting toy in front of her.

Harding was running around playing with his trains and noticed that I was taking pictures of Shelby. I think he wanted some attention, so he got down on his belly too and started pushing buttons on the toy with his sister. She loved it.

And here is the really neat thing. Shelby has trouble doing things with her left hand. She struggles with grasping objects and supporting herself using the left side. Shelby realizes this and just prefers to use the more efficient right hand. We are constantly trying to find creative ways to isolate Shelby's right hand and force her to use the left so that she'll get better at it. Either Harding has observed this, or just happened to be lying on her left side, but look what he did:

They played like this for several minutes. Shelby seemed to be soaking up the attention from Harding. I think she is lucky to have such a great big brother!

Then after a good 7 minutes, Harding got up and went back to his truck....and took the toy with him. I had to laugh, because it was such typical sibling behavior. At some point, I know she'll be able to return the favor and take away his stuff. In the meantime, Shelby has plenty  of other toys.

Happy brain!

I don't think we could have asked for a better trip to Durham. First of all, we arrived last night at Fran Carruthers' house (Tiff's 2nd cousin) and were treated like royalty. Fran made us a fabulous meal, washed the clothes that Shelby had vomited on, and basically took care of our every need while we relaxed. It was very nice--and good to catch up with her. We reluctantly left her place very early this morning so that we could get to Shelby's CT scan appointment early. That certainly paid off...we barely had to wait and Shelby did not need any sedation. Here Shelby is going into the machine:

We left radiology and headed upstairs to the neurosurgery clinic about 2 hours early for our appointment with Dr. Grant--and we got to see him right away!

Dr. Grant gave us some wonderful news. He said Shelby has a "happy brain". As you can see in the picture below, her CT scans look amazing! For those who remember her last scans, there is a huge difference in these. The left of her brain (right side in the image) has pretty much no cerebral spinal fluid, and the right has a lot less! The thin area of her brain that we were concerned about looks like it's easily three times thicker now. Dr. Grant was actually suprised to see this much of a rebound in her brain, and said this is really good for her developmental prognosis. We weren't expecting any bad news, because Shelby has been doing well, but this great news blew us away!

All smiles, we headed down the road for Shelby's orthopedic appointment with Dr. Patel three hours early. They took us back pretty quickly for Shelby's hip x-rays and then we got to see the doctor.

As you can see, we were told Shelby needs to wear a brace for a few years because the x-rays showed that Shelby has hip dysplasia. She has to wear it all the time and then once she starts to cruise (or walk while holding on to coffee tables, etc), she'll only have to wear it during naps and at night. The brace may delay Shelby's development to some extent. It is hard for me to picture her being able to learn to roll over, sit-up unassisted, crawl, cruise or even walk while wearing the contraption--but Dr. Patel assured us that kids deal with it all the time and I know we'll figure it out somehow (with the help of Shelby's therapists). Plus, Dr. Patel said we can take it off while we're working on PT.

If this was the only problem that Shelby was facing, I think that we would be pretty upset about the bracing and hip dysplasia. But I feel like Shelby has already overcome some very significant obstacles and this one is nothing compared to her brain stuff. Wearing this brace all the time will certainly be awkward and inconvenient for Shelby (and us), but we are up for the challenge, and hopefully it will correct the displasia and prevent hip surgery down the road. We should know by the time she is 4 years old whether or not it has worked.

We left Dr. Patel and stopped at our favorite restaraunt near the hospital, Noodles and Co. to get some food. Then we were on our way back to the mountains at 1:00 - a half hour before our last appointment was even scheduled to start! We got to collect our dog (thanks Matt and Ash) and Harding (thanks John and Barb) and eat dinner together tonight. Now let's hope Shelby sleeps well in that brace.